Been awhile since I created this site, do not know if it is worth while only because I am a very private person. Will try to keep up to date on this, but don't know if I will. Been very angry lately at all that is happening in the world and that has me more focused at trying to change things by at least calling and writing Congress.
I know this is suppose to be about Anthony and he is definetly worth writing about, but just trying to survive and get things done to help our family first.
I am happy that someone is interested in researching SMARDS, but just cautious because I know that it takes years before anything happens (look they still have no way of curing Duschene's).

We finally took Anthony out somewhere - Great Lakes Crossing: Bass Pro Shop (saw fish and stuffed Elk, Deer, Moose, etc) really liked that; walked around to Rainforest Cafe and liked looking at the fish, but was getting really tired so we had to head home. He slept for three hours. Anytime we take him out he is so exhausted.

Just started this website for Anthony Gene, now I just need to learn how to do more with it.